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‘Doctors were certain I was Anorexic – in fact I had Crohn’s’

Looking back at teenage photos, Fiona Argo can barely recognise herself as the young woman with jutting collarbones and stick-thin legs. But she can see why concerned friends and family thought she was in the grip of an eating disorder.

Looking back at teenage photos, Fiona Argo can barely recognise herself as the young woman with jutting collarbones and stick-thin legs. But she can see why concerned friends and family thought she was in the grip of an eating disorder.

Between the ages of 16 and 19, Fiona’s weight plummeted from 9½ stone to just 5st, extremely underweight for her 5ft 5in frame. Her periods stopped and her weight was so dangerously low she was told she was at risk of heart failure and even death.
She was diagnosed with anorexia and hospitalised. But while the diagnosis seemed obvious to doctors, friends and family, Fiona remained adamant she was not anorexic.

‘I always knew I was experiencing a physical reaction to eating, not a mental one,’ she says. ‘Every time I ate I’d suffer crippling stomach cramps and end up being sick after most meals. I’d never suffered from negative body image and didn’t want to lose weight, so I knew I didn’t have an eating disorder.’

But despite Fiona’s protestations, her doctor did not run tests to establish whether she had an undiagnosed medical condition, instead interpreting her constant denials as secrecy, a trait often exhibited by anorexia sufferers.

It was only when Fiona collapsed in agony in January 2004, aged 19, and was rushed to hospital that doctors discovered she was suffering from Crohn’s disease, a chronic bowel disorder that affects the gastrointestinal tract.

‘Every day is an uphill struggle, and I’ll never forgive the doctors for getting it so terribly wrong,’ says Fiona, now 27, who lives with her partner Simon, 30, in St Peter Port on Guernsey.

‘Sadly, Crohn’s is an illness with no cure, but I probably wouldn’t be this ill today if it had been detected earlier. Though I’m a normal weight, I’m often in pain and still struggle to keep food down. These are symptoms I’d suffer anyway, but are worse because the Crohn’s was allowed to progress.

‘I have to eat several small meals a day because large amounts of food leave me in agony, and I also need to take daily medication.

‘It makes me angry that doctors could have given me a simple stool test or blood test, yet they chose to ignore my symptoms and told me I had a psychiatric illness.’
Fiona’s nightmare started in 2001 when she suddenly started losing weight, dropping from 9½ stone to just 7st in a less than a year.

‘My mum and dad realised something was wrong when I started eating smaller portions at dinner, and they thought I was making excuses. But I couldn’t eat a full meal without pain and vomiting afterwards,’ she says.

In March 2002, when she weighed just under 8st, Fiona’s worried mother Jacqui took her to a local GP, who immediately diagnosed anorexia.

‘I told the doctors that I found eating extremely painful, and that I didn’t want to be this way, but they clearly didn’t believe me,’ says Fiona.

Other GPs at the practice and a bone specialist confirmed this diagnosis.
‘One doctor told my mum I was in denial, and that it was a classic symptom of anorexia. They even told my mum the tricks to watch out for, such as hiding food under the table or slipping off to the bathroom to make myself sick after meals. I wasn’t anorexic, but I don’t blame my parents for thinking I was. I looked really ill.’

Over the next two years, Fiona’s weight dropped further, and by the age of 18 she weighed just 6st. That was when the GP referred her to a bone specialist, thinking the pain may be due to a bad back, but again she hit a brick wall.

‘The specialist wrote a letter to my parents insisting there was “nothing physically wrong” with me and it was all in my head. I felt trapped in a nightmare in which no one was listening to me.

‘My relationship with my parents became strained, too. In the end we went to family therapy, but as the cause wasn’t emotional it wasn’t that helpful.’

By January 2004, Fiona’s weight had dropped to just 5st, dangerously low for her height, and she was admitted to a psychiatric hospital, where doctors force-fed her small meals, but her stay was cut short on the third day when she collapsed in agony.
It was only then that hospital doctors discovered Fiona had suffered a perforated ulcer on her small intestine. Further blood tests revealed she was suffering from advanced Crohn’s disease.

Septicaemia had started to set in and Fiona underwent emergency surgery that same day.
‘For a while it was touch and go, and my dad still can’t speak about my time in hospital without getting upset.’ Thankfully, Fiona made a good recovery and was discharged from hospital two weeks later.

‘My intestines had been blocked because a symptom of Crohn’s is a narrowing of the intestinal tract, but the doctors removed the damaged section of my bowel.
‘Suddenly I could eat properly again — it was a revelation. My parents kept apologising for not believing me. In less than a month, I gained more than a stone.’
There is a simple, non-invasive test that can help diagnose Crohn’s disease even in the early stages of the illness, which could have prevented Fiona’s ordeal.
‘If a doctor suspects Crohn’s, they can carry out a faecal calprotectin test early on, which will show any inflammation in the bowel,’ says Dr Shaw.

‘Crohn’s is a long-term chronic disease that needs to be controlled and half of patients will need an operation at some point. But there is evidence that early diagnosis can avoid complications and the risk of surgery is likely to be reduced.’
Earlier this month, Fiona underwent a fourth operation to remove part of her bowel, and is now in recovery.

‘I don’t know how many more operations I’ll need or if I’ll end up with a colostomy bag, but I try not to think about it,’ she says. ‘I’m moving on with my life, but I hope no one else has to experience what I went through.’

For more information, visit the National Association for Colitis and Crohn’s Disease (NACC), crohnsandcolitis.org.uk